I am Kate, and I was diagnosed with MPN-SVT in 2017. I had just turned thirty.
When I was received the diagnosis, the questions felt endless and substantial. Living with this disease, so many questions go unanswered, for the simple reason that the answers don’t exist …yet. This is one of the things we are hoping to change through the MASCOT project, and why it is so important to me, my doctors, other patients and our futures.
My Story
‘My story’ is probably best told through my blog. The best ones, specifically in relation to my illness, can be found here:
M.A.S.C.O.T 